Caregiver stress is a very real thing.
The person who has Alzheimer’s, they don’t experience stress in the same way that a caregiver does. For them, every moment is new. The caregivers are the ones that worry about the future and worry about the past and worry about the present, constantly worrying about finances, what is going to happen next – it never lets up. But they feel like, ‘I don’t have the disease, I’m not entitled to the attention.’ They start to feel less important, less significant.
Jacqueline Marcell was 46-years-old when she first found out both her parents were diagnosed with Alzheimer’s. Jacqueline wished she had access to a book like the one she has since written – because she knew very little about the disease, and quickly became infuriated with the lack of resources and uncertainty of health care professionals.
Jacqueline watched her parents whole life savings dwindle away, along with most of her own. With the knowledge she has now, she would have know exactly where to go, what to do, how to find the resources and where to find the right doctors without solely relying on the primary care physician.
It was never her intention to become an author, but having been through such a painstaking experience, she’s written a terrific book for those who feel stuck, unsure and guilty from the daily grind of caregiving. Jacqueline’s book Elder Rage is a go-to guide for dealing with senior care and dementia based on her firsthand experience with her own family.
Jacqueline tells caregivers that a roller coaster of emotions is normal. Who could not possibly feel burdened by going through this? And now people are living longer with this disease, averaging 10 years. It’s certainly not a sprint. It’s a marathon, a long journey to get to the end. And as soon as you think you have something managed, something else will happen— new doctors or insurance changes just being a few.
Sadly, Jacqueline developed breast cancer despite having no previous cancer history in her family. She wonders if all the added stress she’s endured while taking care of her parents had attributed to her diagnosis. So, really, anything can happen and it happens to caregivers a lot because of all this stress.
The bottom line is a Caregiver should never take a back seat when it comes to their own health. If the caretaker goes down, who is going to care for the ailing loved ones? Do me a favor and help Jacqueline get this first hand information out. Her book can help millions of people dealing with aging loved one’s. Thank you for sharing this article!
To purchase Jacqueline Marcell’s book, or learn more about her experience, visit www.elderrage.com